Survey Report
Financial Preparedness
76% of parents are NOT confident about lifetime financial security.
Despite deep emotional involvement, long-term financial preparedness remains a critical gap.
Key Risk: Without long-term financial planning, families risk leaving their special needs child without adequate support after parents are no longer able to care for them.
Letter of Intent
90% of families do not have a Letter of Intent.
What is a Letter of Intent?
A Letter of Intent guides future caregivers on:
- Medical needs and treatment history
- Daily routines and emotional triggers
- Financial accounts and benefits
- Educational and therapy programs
- Wishes and preferences of the child
Guardian Planning
3 out of 4 families have not identified a future guardian
Legal uncertainty and emotional risk: Without a named guardian, courts may appoint someone unfamiliar with the child’s needs. Early planning ensures continuity of care and the child’s best interests.
Professional Planning Support
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Create a Will
Establish legal documentation for asset distribution and guardianship.
Set Up a Trust
Protect assets and ensure proper ongoing care funding.
Review Insurance
Ensure sufficient life and disability coverage for the family.
A Bright Spot: Therapy & Development
Strong Commitment to Therapy & Child Development
Over 80% of families actively support therapies and confidence-building activities for their child.
Survey at a Glance
No professional planner engaged
Actively supporting therapy